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I'm a Medical Mystery!

December 23rd, 2006 at 01:59 am


I have been to the doctor's office twice in the past 2 days. I went yesterday for a urine test and today to talk to the doctor again. This time I took DH with me since he can be a bit more forceful. The nurse made me get in a gown so the doctor could see that I am swollen and it's not just weight gain. I think until today he really thought that I had just put on a lot of weight.

The Cushing's test came back negative, so that's ruled out. In fact, he said that all of my tests have come back perfect.

He decided today that he's done all he can do so he's referring me on to a nephrologist to see if the fluid retention has something to do with my kidneys even though tests say they are working fine. So they'll contact the nephrologist on Tuesday when they come back to the office. He also prescribed a heavy duty diuretic, besides the other one I'm taking, just to try to get some of the water off of me. Just a little bit of walking makes me feel like I've run 5 miles. My legs are tired for hours afterwards.

I still have the appointment with the endocrinologist the middle of January too.

I have a cardio lite test scheduled for Tuesday morning at 7 a.m. (it says I'll be radioactive for 10 days after that) LOL, the nerve conduction test for the 28th, and an EEG on the 3rd. Hmmm...any medical tests that I've missed? Well, I guess I haven't had a colonscopy yet! LOL!

I've noticed that my blood pressure goes up during the day, but that's probably because the fluid accumulates during the day. I've been recording it each day at least 2 times.

So that's basically it. No exercising until we know what's going on and the longer I wait the higher the weight goes. I'm almost to 200 now!!!! That's quite a bit for 5'3". I know a lot of it is fluid, but that doesn't make it any easier mentally or emotionally.

I dropped the class I was scheduled to start in January (Accounting Applications), since we don't know what's going to be taking place until things get straightened out and DH really wanted me to take a break anyway. I really want to take this class, but it will be there for me when I'm ready.

Thanks for listening, everyone. I hate to get on here, especially at Christmas time, and complain.

It's a very unsettling feeling to be a medical mystery.

2 Responses to “I'm a Medical Mystery!”

  1. janH Says:
    1166842830

    I feel your pain. I was a medical mystery for a whole year my senior year of high school. I had appendicitis among a couple of other problems, but the symptoms were weird and all tests results came back normal. I went the opposite direction--I wasted away. Finally, a year and four hospital visits later, exploratory surgery revealed the truth. Feel free to vent as much as you need to. I understand your frustration. Good luck on your other tests. Aren't they fun?!

  2. sarah Says:
    1166850468

    This sounds horrible. Good Luck. Venting is good for the soul. We're here to listen (er read)

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